First Steps After an Alzheimer’s Diagnosis

First lets look at what Alzheimer's Disease is:

• Alzheimer’s Disease is a terminal illness. So is life!

• At least 2 parts of the brain is dying.

• There isn’t a treatment, and it is progressive.

• It’s crucial to recognize that managing this disease requires a comprehensive approach and support system.

• Alzheimer’s is the cause of dementia. Dementia is an umbrella term. There is always a primary cause of dementia; Lifestyle choice is one of them.

Consult with a Doctor

• Meet with a Doctor to assess the needs of the person diagnosed with Alzheimer's. The primary care professional will distinguish if the illness is a symptom of a disease or infection that he can treat. If they suspect that it is neurological, you will receive a referral to a Neurologist. A Neurologist will apply tests that diagnose the damage and what may be causing it.

• Discuss treatment options, care plans, and necessary medical support. You may or may not receive this information at the Doctor’s office. Often you will find yourself sent home with a brochure and a 3 month return appointment.

• Create a Notebook, in it write the questions you would like to ask the Doctor on your next visit. Keep it in a place of convenience, so you may access when a question comes to mind or you see a behavior you are unsure of.

• Keep a list of current medications and allergies in the Notebook, along with emergency contact numbers and next of Kin.

Build a Support System

• Caregiver Support: Realize that you cannot do this alone. Caregivers need support, and the person with Alzheimer's will need assistance as the disease progresses. Create a “task list” (keep in your Notebook) of what you could use help with. Respite care is essential for both you and your career. Begin a list of business’s that may be able to help, call them when you are ready for respite care.

• Family Involvement: Meet with family members to determine who can help and discuss financial matters. Prepare relevant financial information in advance. Great time to have your “task list” handy.

Prepare the Home Environment

• Remove Clutter: A clutter-free home reduces confusion and stress. Remove throw rugs and other tripping hazards. Move or remove tables with sharp edges. Remove breakable items.

• Safety Measures: Install door alarms to alert you if your loved one wanders outside. As the disease progresses, consider removing potentially dangerous items like the stove (disconnect), coffee maker, or toaster. You may also want to install child locks on cabinets, door to garage or other rooms you do not want access to.

Share Your Concerns

• Community Support: Share your concerns with friends, family, and support groups such as social clubs or churches. Building a support network is essential. Seek assistance at your local Senior Community Center or Public Liabrary.

Keep a Journal or Notebook

• Track Changes: Maintain a notebook to document any behavioral changes. This can help identify patterns and be helpful to inform medical personnel.Note if the behaviors came on suddenly or began shortly after starting a new medication.

• Behavioral Changes: Be prepared for daily changes in behavior or personality. Sometimes, these changes are due to medical issues, such as urinary tract infections (UTIs), which can be treated. A person may lash out when they are in pain or uncomfortable, this may be their only way of showing it (they are unable to find the words to express their discomfort).

Embrace the Moment

• Caregiving Approach: When you are a caregiver, it’s often easier to “be in their moment” rather than trying to convince the person with dementia (PWD) otherwise. This approach can reduce stress for both parties. Keep in mind the person living with dementia’s brain is operating on what information it has left and they truly are doing the best they can with what they have left. Arguing will get you nowhere and could escalate the situation.

Self-Forgiveness

• Forgive Yourself: Caregiving is challenging, and mistakes will happen. There is no one-size-fits-all answer to the situations you will encounter. Providing love and compassion is the best you can do. Let go of any guilt. You will make mistakes, its inevitable. Don’t give up, try another approach.

• This is another reason why “self-care” is so important, and you keep hearing the term. Every day could bring a new challenge. Please enable yourself to step back, take a deep breath, and address the challenge with a clear head and calm emotional system.

• Set up respite care BEFORE you need it, so all you have to do is make a call! Refer to your Notebook.

Recommended Resources

• Books:

• "The 36 Hour Day" published by Grand Central Life & Style

• "Still Standing: A Guide for Loving Through Alzheimer’s and Related Dementias" by First United Methodist Church, Marietta, GA.

• Navigating Dementia Care (digital) - easy to use guide that addresses some common challenging behaviors as a result of dementia. Author, Judy King (a seasoned Care partner)

Still need help? No worries that is why I created this site. Call me today to learn more about how you can best support your loved one living with Alzheimer’s or other dementia. Don’t wait. Put your mind at ease. Learn ways to respond to un-wanted behaviors. Book your time now!