How to start the Care process-In and Out of the Home

(Alzheimer’s or other dementia)

To help you begin the Journey of finding a Home Health Aide or Senior Care Community I’ve compiled information over the years and through research. I do not recommend any establishment over the other. It is highly recommended that you pay severall visits at different times of the day to any Facility.

When it comes to advanced care (moving to a Facility) I have witnessed that providing a Home Health Aide or Care person to come to the home before placing a person in a Facility results in a smoother transition. Keeping the person in their home as long as possible could be less expensive and less traumatic in the initial planning stage. It can make it easier for your loved one to accept more care when that times.

“When a person requires help at home, hiring a Home Health Company is an excellent place to start. It is a gentle way for the person needing assistance with daily activities to begin accepting the help. Ask if the person coming to help can wear something other than “scrubs” or “clinic” wear. A collered shirt with a Logo is okay if they can cover the Logo from the Caree. The idea is to introduce the person as a “helper” for them and not as a “nurse” or medical assistance. This might meet with resistance or the comment “I don’t need any help.” This is my personal observation.

Here are a few things to look for in the Care Partner: Agency & Private (Adjust the questions accordingly for a person who isn’t living with dementia)

● Look for a person with experience in dementia, if needed

● Ask them how they will handle a catastrophic event: Agitation (dementia)

● Are they willing to take them for walks

● What will they do if there are inappropriate comments

● What will they do in case of an emergency

● Take a close look at grooming. Look for clean hair and nails. Notice the length of their nails. If they are long, that could present a problem with bathing, dressing, and anything that requires “hands-on” assistance.

● What type of shoes are they wearing? Are they slip-resistant?

● If they are individuals, do they provide a backup care person if they can’t make it?

● If private care: Are they willing to drive your loved one’s car? (Check with your insurance company for coverage.) Again, you would want to check your insurance coverage. Otherwise, you should be prepared to drive them yourself, and there will be many Medical appointments.

● What do their services cost? What services do they provide? For example, light housekeeping is usually included.

● Do they require minimum hours?

● Do they require background checks? Drug test?

● Is there a 24-hour contact?

The answers to these questions and any others you think of will help you find the right agency or care partner for your loved one.

Don’t hesitate to interview different caregiving companies. Find one that works well with you and your schedule. It’s a good idea to have a backup Company.

If you use a Private Caregiver, ensure they know YOU are the boss, not your loved one. Make sure they know you are the only one that can fire them.

Check references and don’t hesitate to call them. You need to have confidence the person coming into your home or theirs is vetted and can be trusted. Please do not skip this step. For peace of mind, you could purchase a small safe to protect medications and valuables.

Finding the right Agency or Care Partner can significantly increase the quality of life for your loved one who requires assistance with daily life activities. Hiring outside care assistance can also give you a good start to your support team. If you care for the person in your home, you will need a good respite care person.

Placing your loved one in a Senior Care Facility

Plan a personal visit to the Facility and see what they offer. Look for things like:

● What do they provide for activities and engagement.

● Do they have an accessible outside area?

● Is it Clean?

● Does it smell?

● Are there residents out and about or in their rooms?

● Do You feel comfortable there?

● Ask how many staff members are in the facility and how many are trained for medical emergencies.

Independent Living: Provides room, board, and other amenities. It does not provide Medical or Personal care. Most allow for third-party care. It is geared toward the older adult who does not want the work of home ownership and upkeep, is in relatively good health, and is looking for social activities in a safe environment.

Assisted Living: (The State governs.) They provide room, board (single or double), food, Medical care, and personal care for activities of daily living (ADLs). Most provide social activities. The degree of personal assistance for ADLs varies. Inquire if they

provide incontinence care and to what extent, and also how much they will assist with transfers.

Assisted living places are also known as residential care, adult care homes, or sometimes board and care homes. Some people mix up assisted living with nursing homes, but they're different. Nursing homes offer skilled nursing care that you can only get in assisted living if you hire a separate home care agency.

Respite Care provides short-term care for the person at home or in a facility. Most Insurance does not cover respite care. Most services charge by the hour with a 3-hour minimum.

Medicare will cover most of the cost of respite care in a hospital or skilled nursing facility for up to five days in a row for a person receiving hospice care.

Medicaid may also offer assistance.

You may find other funding sources within your state at the National Respite Locator ARCH. https://archrespite.org/respiteocator.

Medicare is a federal insurance program for people 65 or older. Pays some medical costs if you receive Social Security Disability Income for 24 months. 

Medicare Part A 

● Covers hospital costs after you pay the deductible 

● Short-term stays for certain kinds of illness 

● In the last six months of life, hospice care 

Medicare Part B 

● Pays part of the costs for Doctor's services, outpatient care, and other medical that Part A does not cover 

● Covers some preventive services like vaccines, flu shots, and diabetes screen 

Medicare Part D 

● It covers some medication costs 

For complete information on what is covered by Medicare, please visit: www.medicare.gov

Medicaid - a combined Federal and State program for low-income people and families. It will pay the costs of some types of long-term care for some people. You must meet specific financial requirements. 

www.medicaid.gov 

You may also contact your State Health Department. For a State by State list, visit www.medicaid.gov/state-overviews

PACE - Program of All-inclusive Care for the Elderly- a program that combines Medicare and Medicaid benefits. PACE may pay for some or all of the long-term care needs of the person with Alzheimer’s Disease. It covers medical, social service, and long-term care costs for frail people. It permits most people who qualify to continue living at home instead of moving to a long-term care facility. PACE is available only in certain states and locations within those states, so there may also be a monthly charge. The person will need to qualify for PACE. 1-877-267–2323 

www.medicare.gov/your-medicare-costs/get-help-paying-costs/pace 

Social Security Disability Income - This type of help is for people younger than 65 who are disabled, according to the Social Security Administration’s definition. www.ssa.gov 

State Health Insurance Assistance Program (SHIP) - A National program offered in each State that provides free counseling and advice about coverage and benefits to people with Medicare and their families. www.shiptacenter.org. 

Department of Veterans Affairs - The U.S. Department of Veterans Affairs may provide long-term care for some veterans. There could be a waiting list for VA nursing homes. The VA also provides some at-home care. www.va.gov/health 

National Council on Aging - A private group, has a free service called BenefitsCheckUp (registered). This service can help you find Federal and State benefit programs that may help your family. These programs can help pay for prescription drugs, heating bills, housing, meal programs, and legal services. 

www.benefitscheckup.org

Medicare and Medicaid

Legal and Financial 

Durable Power of Attorney for Finances - Give someone the power to make legal and financial decisions for another person. 

Durable Power of Attorney for Health Care - gives someone called a ‘“proxy” or an agent the power to make health care decisions for a person. 

Living Will - states a person’s wishes for health care at the end of life. 

Do Not Resuscitate (DNR) Form - tells health care staff that the person does not want them to try to return the heart to a normal rhythm if it stops or is beating unevenly. 

Will - tells how the person wants his or her property and money to be divided among those left behind. 

Living Trust - tells someone called a Trustee how to distribute a person’s property and money. 

Help is driving becomes an issue. First, discuss it with the person you have concerns about. See if some friends or neighbors could help. If the person refuses to stop driving, you can ask their Doctor to write a “Do Not Drive” on a prescription and show this to the 

person. Some States require a Doctor to report this to the Department of Motor Vehicles. You could also take them for a driving test. If possible, you could un-hook the battery cable or keep the keys. 

If the person refuses to stop driving and is at risk of hurting themselves or others, you can contact the Department of Motor Vehicles and ask about a medical review. The person may be asked to retake a driving test. In some cases, the person's license could be taken away.

Resources: 

Centers for Medicare and Medicaid Services (CMS) 

1-800-MEDICARE (1-800-633-4227) 

TTY: 1-877-486-2048 

www.medicare.gov 

On the website for CMS, you will find a guide to help you choose a good skilled nursing facility. Also, on their website, you will find a service called Nursing Home Compare. NHC provides information on whether or not a facility is Medicare or Medicaid-certified. 

Resources 

Centers for Medicare and Medicaid Services (CMS) 

1-800-MEDICARE (1-800-633-4227) 

TTY: 1-877-486-2048 

www.medicare.gov 

On the website for CMS, you will find a guide to help you choose a good skilled nursing facility. Also, on their website, you will find a service called Nursing Home Compare. NHC provides information on whether or not a facility is Medicare or Medicaid-certified. 

Joint Commission 

1-630-792-5800 

www.qualitycheck.org 

www.jointcommnission.org 

The JC determines whether or not a facility meets professional standards of care through evaluations. They provide an online service wherein you can learn more about the quality of care provided at facilities: www.qualitycheck.org

National Center for Assisted Living 

1-202-842-4444 

www.ahcancal.org/ncal 

Long TermCare.gov 

Administration for Community Living 

1-800-677-1116 

https://longtermcare.acl.gov 

National Adult Day Services Association 

1-877-745-1440 

www.nadsa.org/consumers/choosing-a-center 

Argentum 

1-703-894-1805 

www.argentm.org 

Argentum is the leading national trade association serving companies that own, operate, and support professionally managed senior living communities. 

National Association for Home Care & Hospice 

1-202-547-7424 

https://agencylocator.nahc.org

Hospice Foundation of America 

1-800-854-3402 

www.hospicefoundation.org 

National Hospice and Palliative Care Organization 

1-800-658-8898 www.nhpco.org/find-hospice 

Care.com - I’ve used this site with much success. Vet potential caregivers well. 

Alzheimer’s Association 

1-800-272-3900 

www.alz.org 

Alzheimer’s and Related Dementias Education and Referral Center (ADEAR) 1-800-438-4380 

www.alzheimers.gov 

Great source of information on all aspects of the disease. 

Alzheimer’s Foundation of America 

1-866-232-8484 

www.alzfdn.org 

Provide a list of services for people with AD and provide care information 

Eldercare Locator 

1-800-677-1116 

https://eldercare.acl.gov 

Federally funded. Provides community resource information 

National Institute on Aging Information Center 

1-800-222-2225 

www.nia.nih.gov/health 

Provides helpful publications 

NIH Guide: “Caring for a Person with Alzheimer’s Disease” Your Easy-to-use guide for the National Institute on Aging